Back to the Pokie---Take Three

Hi Everybody,


Did you guys all have a nice weekend?  I sure hope you did because I had a blast!  My ACN even went up to 2100!  WHOOPIE!  Hee-hee!  That's a new word I learned from my friend Stacie. Whoopie, isn't it fun?!


My family went to the Home and Garden show on Saturday.  It was so nice to be outside.  You don't realize just how nice it is until you spend a month inside.  

I also got to try an S'more for the first time.  Can you say yummo because I sure can?!  Actually, just let me have at the chocolate.  

I found a new round and round in the dishwasher!  I even gave a lesson on it being high efficiency.  It was fun!!!

I walked a doggie and her name was Sadie...

I ate some frozen yogurt...Yummo! (by the way I LOVE CHOCOLATE!)

I went to jail....

I even played in the kitchen with my Police truck while my Mamas made pastas.

You can't end fun filled time away from the Pokie with out some bouncing on the bed so I did a bit of that too.

I sure hope you all had as much fun as I did!

Today I went back to the Pokie and started round three of my Chemo.  I don't know yet how many days I'm going to have to take the yucky Chemo.  This time I'm in room 645B but I don't know how long I'm going to be in that room so keep following here to get updated on that.

Thank you for all your prayers and support of my family!

Love,

Noah

Help Needed

Happy Sunday Everyone,


I'm sure by know you have seen the posts that are being shared on Facebook regarding Noah's Take Them A Meal food calendar.  We have had a few more post this weekend to help but we really need more help.


If you want to help but maybe you don't have time to deliver meals, maybe you don't have the budget to provide food but you have the time to deliver food, or yet maybe you don't live in the area but want to help.  If you fall into any of these categories we have options.


We humbly request that you please consider how you can help in the area of food.


Please email at NoahMrMans@gmail.com or contact Stacie Evans @ my Facebook page...  https://www.facebook.com/belovedgirl for how to help.  If that link does not work you can find me on Carrie and Ryan's Facebook page as well.


Carrie and Ryan are so grateful for everything each of you have done so far.  They are constantly blown away by your generosity & your support of their family during this time.


Thank you all!


Stacie Evans

Bouncing Buckaroo's

Hi Everyone,


So last night we left off with the day being a really low day for me and my family after hearing my ACN had dropped even further down to 224.


Well this morning when I got up I noticed that my bed was a bit bouncy.  And then, someone brought in a trampoline.  Shhh though because even though no one but me, Mamas and Da Dah's can see my trampoline it's hidden under my bed just to make sure it stays there.  Mommy and Daddy suited up in that football gear I was telling you about, and with that we were ready for my next ACN test.


Guess what it is today?  Remember 500 is what I need to go home.  Got your answer?  Hey you!  Yep you, no peaky peaky at your neighbors answers.


If you guessed 799 then we need to play Bingo together!  Waahoo!!!!  That number right there...that 799...well that's a God thing just so you know!


Mamas and Da Dah's wasted absolutely no time in tackling those doctor's and guess what?  I'M NOT IN THE HOSPITAL!!!!  

This is my reaction when I was told that I get to go home.

See this grin?  I remember what happened last time I was in my car seat...

MOM....I'm going home!!!!

Driven through town just my boy and me...

(Mamas is taking a quick picture of Da Dah's and me driving home)

Fresh out of the truck and about to head upstairs...

Daddy, let's take a peak at the round and rounds; the air conditioning units...

Still climbing my way up the stairs....

Home again home again and inspecting my favorite round and round; my fan...

So, I'll be home until next Tuesday which is 27th.  Tuesday I'll go back to the Pokie and start round three of Chemo.  I have to go back for my Spinal Tap and Bone Marrow Biopsy tomorrow but other than that....I'm outta the Pokie!!!

Mamas is so excited because other than a couple of jobs on Thursday and Friday Da Dah's will be able to be home most of the time and after Friday he'll be able to be home all the time too!

So for everyone bringing meals you'll need to bring them to my house.  If you haven't been here yet you can call/text us or message Stacie (you'll find her on Facebook) and we'll give you directions.

I don't know how much I'll be updating while I'm outta the Pokie so don't be alarmed if the next update is Tuesday.

Love,

Noah

I want to trade.....

My roller coaster for a trampoline that is.


Today was not a good day in Cancerland.  My ACN seems to have a mind of its own and dropped more to 224.  Can someone take my roller coaster and give me a trampoline please?


Nothing really else to tell you all today.  My energy may be up but our spirits are really down.  


So here's a couple of songs.  

The first one is just seems to say how we feel today and that's this one here....

And this one....well I may not be a Buceroo but I want out of here so bad so I can ride around with my Da Dah's.  Right now if I could be with my Da Dah's every minute of every day then that's what I would do.

Love,

Noah

Making Signs

Hi Everyone,


So if you were in jail what sign would you make?  Well my jail is the Pokie and the sign I came up with today is...

Caution

Wrong Way

&

U-Turn Ahead

My ACN came back at 238 today.  You guys have to guess higher numbers next time!  I'm just kidding.  It was a big bummer to get the lower numbers today but the upside here is it isn't a Goose Egg!  We'll take that.

That's all I really have for you all right now.  The news today was hard on my family.  I know you all do but I'll just ask again to please pray for my family.  

Everything else is good with me.  I still have lots and lots of energy.  It's just been a bummer of a day with the news.  Please understand the ACN number is way better than the Goose Egg....we're just all ready to go home.

Love to you and your family,

Noah

Ways To Say Goodbye....

In French it's...Au revior

In Spanish it's....Adios

In German it's...Servus

And in Italian it's....Arrivederci

And if you're me?

SO LONG POKIE!!!

So guess what I've been asking to do all weekend?  Yep, I want to say so long to the Pokie so bad.  Especially today; I really had a case of the Grouchy Bear.  Playing with the Goose Egg isn't cutting it anymore so I put the Goose Egg away.  Guess what my ACN is now?  Okay, everyone pick a number between Goose Egg and 500.  Five hundred is what I need to say so long Pokie.  Everyone have your number?  Oh, you want a hint???  Okay, your hint is that it has THREE numbers in it!  Ready???

272!!!!

My Mama's and Daddy are so funny and are planning some mischief!  Da Dah's went home tonight to get some rest.  Da Dah's is coming back in the morning though and Mommy and Daddy are going to suit up in all of the football tackle gear they hid under my bed.  Then they're going to tackle the doctor and convince him that it's time for Mr. Man's to go home again.  Mamas really wants me to get released tomorrow but it may be Thursday.  Part of going home is the normal Bone Marrow Biopsy and whatnot.

So if I do get to go home tomorrow then the food deliveries will go to my house instead of the hospital.  For those of you signed up you'll get a phone call to let you know.  Mommy and Daddy are so grateful for the food.  It's a huge help to my family and something they really need to have continue so feel free to sign up.

So, most of you know that my Mommy works for the Fire Department.  Remember back when I told you I thought Christmas had come early with all the fun presents I had given to me?  Well, Christmas came early for my Mamas too.  She was told that instead of having to come back to work right away she can stay off work until January!  Can you believe that?  Mamas wants to be able to stay until November and then she thinks that she will try to get back to work.

We've told you many ways you can help our family & then you've come up with so many on your own as well.  This is another way my Fire Fighter Family (Family should have nicknames so I'm going to start calling them the  Triple F's!) can help.  Mamas says that the Triple F's can donate a day to her.  That donated day gives my Mamas one more day to be with me.  It takes a lot of stress away from Mommy & Daddy trying to figure out who can stay with me during the day because they really want one of them to be here with me.  Can you do it Triple F's? Please???

One last thing Mommy wants to share with all of you.  Many of you have been making donations via PayPal and there are many others who are mailing checks to Daddy's work PO Box.  Mommy thinks that they are going to move away from the PayPal account and just ask you all to send checks instead due to how much PayPal keeps of your donations.  You can mail checks to:  PO Box 1627, Folsom, CA 95763.


That's all I have for now so I'm going to say good night.


Love,


Noah

Goose Eggs

Hi Gang,


So yesterday my ACN came back at 54!  That's not a big number but progress is progress and we'll take it!  We thought we were done playing with the pesky goose egg but guess what came back today on my ACN?  Another big ol' fat goose egg.  Everyone is so amazed that even with the 0 for my ACN that I have so much energy.


Mamas and Da Dah's are so happy that I haven't had fevers or rashes and that right now I'm all about playing.  This time is so different from my first round of Chemo.


Mommy has to go back to work soon.  Please pray for my family as the transition to going back to work comes and all that that includes (time with me, care for Matthew, having family time, etc).  Da Dah's has been doing as much work as he can and also be here.  You know those tight rope people they have that walk on that itty bitty rope?  That's my dad.  He's balancing all of this stuff and I don't know how he does it.  I have his genes though so when I grow up and am big and strong like him I'll be able to do it too.


Thank you to the people who signed up to bring food again.  My family can't say enough how big of a gift that is to us.  It's not just the feeding part, it's the visit, the fact that you love my family enough to make or buy something, drive it all the way across town to deliver it and the fact that it is one less thing for Mommy and Daddy to think about.


As always, thank you for loving me and my family.


Love,


Noah

Just A Little Update

Hi Gang!


So, you all know that I finished my Chemo for the second round.  I did great this time around, no rashy rash or fevers and I've had oodles of energy!  Only downside is that my ACN is a big fat goose egg.  It's a big jump to the ACN numbers I need to hit in order to go home again but the doctors think that if I stay doing well I might, not probably but a might, be able to go home next week. 


Because I've been feeling so well there are lots and lots of new pictures.  Since there were about 40 added tonight you can find them all in my handy dandy photo album below.  Some of the pictures are from when I first had to stay in the hospital.


I know we last talked about the meal calendar.  I don't know if any of you decided that you wanted to keep loving my family this way but if you did and signed up please email me at NoahMrMans@gmail.com and let me know what day you had signed up for.  There might be a problem with the calendar and right now it doesn't show that anyone has signed up.


Thank you for praying for my family.


Love,


Noah

Take Them A Meal

Hi Everyone,


The entire Johnson & Erion family, Krista (she runs the food calendar), the church family who has set up people to come to the hospital to visit each day with Noah, and myself, Stacie (writer of the blog) are absolutely amazed at how you all have come together to love on this family.  You've come to clean house, run errands, offered to help pack & move the Johnson family once they have new housing squared away, you play and hold Matthew, bring toys for Noah & brighten his spirits, you've been a shoulder to Ryan and Carrie and you've brought food...lots and lots of food.


By now you know that Noah's stay in the hospital for this round of Chemo is going to run a few more weeks.  We are coming to the end of when the original calendar was dated out to.  Krista has expanded the Take Them A Meal calendar through Christmas Day.  We are in need of your continued help with the food.  We have a need for food as of this Saturday.


The link to the food calendar is just down below this blog on the lower left hand side.  If you want to know how else you can help Carrie and Ryan please get in contact with me, Stacie.  You can email NoahMrMans@gmail.com or you can find me here on Facebook....


https://www.facebook.com/belovedgirl


Again, thank you so much for everything each and every one of you have done.


Stacie Evans

Another Round of Chemo

Hi Everyone,


Guess what I am!  I'm a chemo pro!  We finished round two of chemo and I didn't have any big issues this time.  I have a lot of energy even though my ACN is only 84 right now.


Anyway, here are a few pictures from the past few days to get everyone caught up.

I'm posing with the fish.  This was taken the last day I was able to play in the playground until I was finished  with chemo this time.

But I wasn't away from the playground for too long.  I'm back and playing with the school bus.  How many of you know "The Wheels On The Bus"?  Tell you what, I'll start at the end of this little bloggy blog and you guys post the next line...just one line though.  That way it will be like all of you guys reading about me will be like you are singing along with me.  Will you do it please?  I'll share my Jamba with you!

I have to tell you guys that I have the best little brother.  He snuggles with me, keeps me company, AND, he shares this....

I must say it's a lot of fun to play with!

Well, that's all I have for now but I'll tell you more again soon.  Thank you to everyone who bring my family food, comes by to say hello, spends time with me and my family, helps my family by running errands, doing laundry for my Mamas and Daddy, those who bring me fun new toys, everyone who reads this and who prays for me and my family.  Everything you all do means everything to my family.  We couldn't do this without all of you.

Love,

Noah