Asparginase

Hi Everybody,


Did you all have a nice Thanksgiving?  My family sure did....we didn't have to spend it in the Pokie!  We had lots of yummy food, I ran all over the place and I got to see George some more too.


We went back to the Pokie on Friday to get checked in and get ready for what was on the schedule for today.  At around 2:40 a nurse (that I don't wanna see again since she decided to poke me) came in to start the process of giving me my Asparaginase Shot.

*****To all of you who decide to watch the next two video posts below please be prepared before you watch them.  The video posts are raw and emotional...they are not edited to make them easier to watch.  I did my best to give you all everything that Noah went through today.  Stacie******

This video here is my nurse giving me some numbing cream.  It numbs the top layers of my skin.  Then I have to have an ice pack on it for about five minutes.

Next came "Buzzy".  I don't like buzzy....not one bit!  The nurse said that Buzzy would help my muscle expand and confuse the nerves before I get my Asparaginase Shot.

At least after three hours and a nice long nap I was told it was time for us to all say "So long Pokie"!  Just in time to not have to eat the hospital food.

And then, I was outside and heading to one car to head home.  I like riding home in Da dah's truck but it sure is nice to have my whole family in the car with me!

Well, that's all I have for right now.  I have to do another one of those nasty shots soon.  I wonder if I told my Daddy to run fast, fast he could outrun that pesky nurse with that needle?!

Thank you all for continuing to pray for me and my family.

Love, 

Noah

God All Around

Hi Everyone,


Hope you all had a nice weekend!  We had a few different changes here.  So many people turned up to help my Mommy and Daddy with the move.  From cleaning the new house to packing and moving all of our stuff into it, to Grammy staying all day and playing with Matthew and me.  It wouldn't have happened without all of you pitching in!  I'm excited to go to my new house when I'm able to escape the Pokie.


I keep hearing all the great things that my new puppy is learning & that he's really, really smart.  I'm so excited that I was given George and I can't wait to snuggle him!  Have I told you guys the story of George?  My friend Stacie has a friend who breeds Goldendoodles.  They originally though George was sold to someone else but then things happened and they couldn't buy George.  So Stacie talked to MG to see if my getting George was an option.  And what do you know....it was!  Do you all remember when I asked you to pray for my friend Matt who passed away from his cancer fight?  Do you also remember how I said we named George after Matt by using Matt's middle name?  Well here's a God thing.  Matt's Daddy's name is Darryl.  Guess what George's name was before we renamed him?  Darryl!  God is all around.....even is a black fuzzy puppy.


As for me, my ACN bottomed out to zero.  I just have to remember that we don't want the Goose Egg to stay around so my ACN's can climb.  Also, I said goodbye to the Broviac and I now have a PICC Line.  I know a lot of you probably don't know what that is so this link might help. http://picclinenursing.com/picc_why.html.  I also had a platelet and hemoglobin transfusion.


As for other prayer requests for us, we're all under the weather now.  Please pray that my family gets to feeling better very soon.


Love,


Noah

Cancer Coaster Climb

Morning Everyone!

So, you want to hear a funny?  You know how I'm always talking about my ACN's and playing with the Goose Egg?  Well this time around my ACN went all the way up to 4300 but man, it sure took it a long time to drop down to "0".  It finally did but the Goose Egg hasn't stuck around very long this time.  Today I'm already up to 240!  The doctor said that I just might get to go home tomorrow.  WHOOPIE!!!  I don't know how long I'll be able to stay home this time before we start the next round of Chemo but I'll let you know when I find out.

We were all really needing some good news after Matt passing away so this is very much needed.  Please say a couple of prayers that I get to leave the Pokie tomorrow.
As always, thanks for help, love and support!  We couldn't do this without you.

Love,
Noah

Back to the Pokie---Take Three

Hi Everybody,


Did you guys all have a nice weekend?  I sure hope you did because I had a blast!  My ACN even went up to 2100!  WHOOPIE!  Hee-hee!  That's a new word I learned from my friend Stacie. Whoopie, isn't it fun?!


My family went to the Home and Garden show on Saturday.  It was so nice to be outside.  You don't realize just how nice it is until you spend a month inside.  

I also got to try an S'more for the first time.  Can you say yummo because I sure can?!  Actually, just let me have at the chocolate.  

I found a new round and round in the dishwasher!  I even gave a lesson on it being high efficiency.  It was fun!!!

I walked a doggie and her name was Sadie...

I ate some frozen yogurt...Yummo! (by the way I LOVE CHOCOLATE!)

I went to jail....

I even played in the kitchen with my Police truck while my Mamas made pastas.

You can't end fun filled time away from the Pokie with out some bouncing on the bed so I did a bit of that too.

I sure hope you all had as much fun as I did!

Today I went back to the Pokie and started round three of my Chemo.  I don't know yet how many days I'm going to have to take the yucky Chemo.  This time I'm in room 645B but I don't know how long I'm going to be in that room so keep following here to get updated on that.

Thank you for all your prayers and support of my family!

Love,

Noah

Bouncing Buckaroo's

Hi Everyone,


So last night we left off with the day being a really low day for me and my family after hearing my ACN had dropped even further down to 224.


Well this morning when I got up I noticed that my bed was a bit bouncy.  And then, someone brought in a trampoline.  Shhh though because even though no one but me, Mamas and Da Dah's can see my trampoline it's hidden under my bed just to make sure it stays there.  Mommy and Daddy suited up in that football gear I was telling you about, and with that we were ready for my next ACN test.


Guess what it is today?  Remember 500 is what I need to go home.  Got your answer?  Hey you!  Yep you, no peaky peaky at your neighbors answers.


If you guessed 799 then we need to play Bingo together!  Waahoo!!!!  That number right there...that 799...well that's a God thing just so you know!


Mamas and Da Dah's wasted absolutely no time in tackling those doctor's and guess what?  I'M NOT IN THE HOSPITAL!!!!  

This is my reaction when I was told that I get to go home.

See this grin?  I remember what happened last time I was in my car seat...

MOM....I'm going home!!!!

Driven through town just my boy and me...

(Mamas is taking a quick picture of Da Dah's and me driving home)

Fresh out of the truck and about to head upstairs...

Daddy, let's take a peak at the round and rounds; the air conditioning units...

Still climbing my way up the stairs....

Home again home again and inspecting my favorite round and round; my fan...

So, I'll be home until next Tuesday which is 27th.  Tuesday I'll go back to the Pokie and start round three of Chemo.  I have to go back for my Spinal Tap and Bone Marrow Biopsy tomorrow but other than that....I'm outta the Pokie!!!

Mamas is so excited because other than a couple of jobs on Thursday and Friday Da Dah's will be able to be home most of the time and after Friday he'll be able to be home all the time too!

So for everyone bringing meals you'll need to bring them to my house.  If you haven't been here yet you can call/text us or message Stacie (you'll find her on Facebook) and we'll give you directions.

I don't know how much I'll be updating while I'm outta the Pokie so don't be alarmed if the next update is Tuesday.

Love,

Noah

I want to trade.....

My roller coaster for a trampoline that is.


Today was not a good day in Cancerland.  My ACN seems to have a mind of its own and dropped more to 224.  Can someone take my roller coaster and give me a trampoline please?


Nothing really else to tell you all today.  My energy may be up but our spirits are really down.  


So here's a couple of songs.  

The first one is just seems to say how we feel today and that's this one here....

And this one....well I may not be a Buceroo but I want out of here so bad so I can ride around with my Da Dah's.  Right now if I could be with my Da Dah's every minute of every day then that's what I would do.

Love,

Noah